Eddie Vedder's New Documentary Spotlighting a Rare Disease to Premiere on Netflix

And now, Netflix has picked up Matter of Time, the title of Eddie Vedder 's new project that spotlights Epidermolysis Bullosa (EB) and follows the iconic musician, 61, as he hosts a fundraising ...

Eddie Vedder's ‘Matter of Time' Documentary Lands At Netflix, Sets Premiere Date

EXCLUSIVE: Eddie Vedder, lead singer of veteran rockers Pearl Jam, has been helping to fund a cure for Epidermolysis Bullosa ...

This 11-year-old has battled a rare disease for years — a breakthrough drug helped deliver relief

Actor turned rare disease advocate Luke Rosen tells how his daughter, Susannah, lives with a KIF1A-associated neurological disorder, or KAND.
WRAL

Eddie Vedder’s quest to help cure a rare disease subject of new documentary

(CNN) — “Matter of Time,” a documentary featuring Pearl Jam frontman Eddie Vedder that is set to debut this summer at the Tribeca Film Festival, is being billed as much more than a concert film – it’s ...

‘Noah,' a Documentary About a Woman With Seven Rare and Incurable Diseases, Acquired by Jambika Docs (EXCLUSIVE)

Barcelona-based sales agency Jambika Docs has acquired the documentary feature "Noah" ahead of the European Film Market in Berlin. "Noah" will have a limited theatrical release in Spain followed by a ...
STAT

Parents of children with rare diseases ask: How long until our CRISPR miracle?

Lozano is a rare disease mom, neuroscience Ph.D. candidate at UC Davis, and board member for the PURA Syndrome Foundation. In May, a historic moment in science and medicine was captured in a single ...

This woman was misdiagnosed with bipolar disorder. It turns out she has a rare autoimmune disease instead

A relatively new class of autoimmune diseases that affect the brain is making psychiatrists rethink some diagnoses.