Eddie Vedder's New Documentary Spotlighting a Rare Disease to Premiere on Netflix

And now, Netflix has picked up Matter of Time, the title of Eddie Vedder 's new project that spotlights Epidermolysis Bullosa ...

Eddie Vedder's ‘Matter of Time' Documentary Lands At Netflix, Sets Premiere Date

EXCLUSIVE: Eddie Vedder, lead singer of veteran rockers Pearl Jam, has been helping to fund a cure for Epidermolysis Bullosa ...

This woman was misdiagnosed with bipolar disorder. It turns out she has a rare autoimmune disease instead

A relatively new class of autoimmune diseases that affect the brain is making psychiatrists rethink some diagnoses.
STAT

Parents of children with rare diseases ask: How long until our CRISPR miracle?

Lozano is a rare disease mom, neuroscience Ph.D. candidate at UC Davis, and board member for the PURA Syndrome Foundation. In May, a historic moment in science and medicine was captured in a single ...